The Butterfly Fund

What is The Butterfly Fund?

The Butterfly Fund financial assistance program was established in 1999 by the Board of Directors of the Brain Tumor Foundation for Children to provide direct financial assistance to needy families of children and young adults with brain and spinal cord tumors for items not covered by other means. This program provides limited specific and selective financial assistance to eligible individuals. 

What types of expenses are covered by The Butterfly Fund?

Expenses covered include, but are not limited to:

  • Assistance with rent or mortgage payments, utility bills, car loan payments, car repairs, miscellaneous household expenses, etc., which a family may be unable to afford due to loss of work at the time of a child’s diagnosis and treatment
  • Items not normally covered by some health insurance plans, such as special medications, long-term or special rehab services, hearing devices, wigs and prosthetic devices, home health services, tutoring, etc.
  • Travel and lodging expenses associated with seeking and/or obtaining treatment at locations outside of the patient’s city or state
  • Funeral expenses
  • Cable, credit card and medical bills are NOT typically covered

Who qualifies for assistance from The Butterfly Fund?

Families of children and young adults with brain or spinal cord tumors who have an unmet financial need that is a direct result of the child’s brain tumor diagnosis and who are receiving treatment/care at one of the following facilities:

  • All Children’s Hospital – St. Petersburg, FL
  • Arnold Palmer Hospital for Children – Orlando, FL
  • Bi-Lo Children's Cancer Center – Greenville, SC
  • Blair E. Batson Hospital for Children – Jackson, MS
  • Child Life Institute – West Palm Beach, FL      
  • Children's Health Memorial – Savannah, GA                       
  • Children’s Healthcare of Atlanta (CHOA) – Atlanta, GA
  • Children’s Hospital – New Orleans, LA
  • Children's Hospital of Alabama (Birmingham Children’s) – Birmingham, AL
  • Columbus Regional Women & Children's Center – Columbus, GA
  • Dana-Farber/Children’s Cancer Center – Boston, MA
  • East Tennessee Children's Hospital – Knoxville, TN
  • Georgia Health Sciences University – Augusta, GA
  • Kentucky Children’s Hospital – Lexington, KY     
  • Kids Cancer Foundation – Loxahatchee, FL  
  • Medical University of South Carolina Children's Hospital – Charleston, SC
  • Miami Children’s Hospital – Miami, FL
  • Palmetto Health Children’s Hospital – Columbia, SC
  • Pediatric Oncology Support Team (POST) – West Palm Beach, FL
  • Shands Children’s Hospital @ University of Florida – Gainesville, FL
  • St. Joseph’s Children’s Hospital of Tampa – Tampa, FL
  • T.C. Thompson Children’s Hospital – Chattanooga, TN
  • Vanderbilt Children's Hospital – Nashville, TN


Is there a limit to the amount of assistance provided?

Generally, assistance is limited per family per year if the child’s illness continues to be the cause of financial hardship.

How does a family apply for assistance?

All requests for financial assistance through this program must be made through social worker or with other appropriate medical personnel (i.e. nurse, child life specialist, doctor, etc) at any of the medical facilities listed above.  Once a family’s application is completed and signed by appropriate medical personnel, it is submitted to the Brain Tumor Foundation for Children.  Recognizing the urgent nature of such requests, most applications are approved within two (2) business days, but may take up to five (5) days, and funds are disbursed directly to the creditor immediately thereafter.

Genentech Foundation provides $50,000 for the Butterfly Fund

BTFC is thrilled to announce receipt of a grant in the amount of $50,000 for the Butterfly Fund from the Genentech Foundation. This grant, provided through the Genentech Foundation's "Everyday Needs Assistance" program will make a major impact on BTFC's ability to help children and families throughout the southeast who are struggling financially as a direct result of their child's brain cancer diagnosis.

According to Genentech, "In 2009, the Genentech Foundation established the Everyday Needs Assistance Program to provide financial assistance to organizations that support families with children facing cancer. Each organization will have funds available to help ease the financial burden of families while they seek care for their child." A million thanks to the Genentech Foundation!


For additional information regarding The Butterfly Fund financial assistance program
please contact the social worker at your child’s treatment facility.