Jonathan's "Family Matters Most" Fund

 

The Brain Tumor Foundation for Children is honored to announce the establishement of Jonathan's "Family Matters Most" Fund. This Fund, created in memory of young Jonathan Russo, will be devoted to raising funds to provide financial assitance to families of children with brain and spinal cord tumors. We are very grateful to the Russo family for joining us to help families in their wonderful son's name.

 

Jonathan Russo

On August 29, 2007 Jonathan Guy Russo was born to parents Jason and Jen and big brother Jace. He was a happy healthy baby and a typical little boy whose favorite things were Thomas the Train, Oreo cookies, and being home with his family. At 18 months old, Jonathan started having headaches. Doctors said that any number of things could be causing them. As he got older, the headached became worse. On March 3, 2011 Jonathan woke up with a severe headache that no medicine could alleviate. He was brought to the emergency room at Children's Hospital and after a CT scan, he was diagnosed with a brain tumor called Craniopharyngioma. This type of tumor is very rare and there is little research, but what we do know is that it is formed in utero and affects the pituitary gland. Chidlren are typically diagnosed with a Craniopharyngioma between the ages of 5 and 10 years old. Jonathan was just 3. After being diagnosed, his only option was surgery to remove the tumor. This very invasive surgery was scheduled a week and a half later on Monday, March 14th. Complications arose during Jonathan's surgery and he never left the intensive care unit. On Wednesday, March 16, 2011 Jonathan left us here on earth and entered into heaven. He beacme "Our Angel." Jonathan continues to live through our thoughts and prayers. Through organ donation, Jonathan was able to save four different lives. Although we prayed for a miracle to heal him, in the end we realized that Jonathan was our miracle.

 

If you would like to make a donation in support of Jonathan's "Family Matters Most" Fund, please click here.