The following are links to comprehensive websites that may be helpful to parents in finding information about their child’s illness.
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"ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals."
"CureSearch unites the world's largest childhood cancer research organization, the Children's Oncology Group, and the National Childhood Cancer Foundation through our mission to cure childhood cancer. Research is the key to the cure."
National Cancer Institute
“More Than 70 Years of Excellence in Cancer Research”
National Institute of Neurological Disorders and Stroke
“The mission of NINDS is to reduce the burden of neurological disease – a burden borne by every age group, by every segment of society, by people all over the world.
National Library of Medicine (United States National Institutes of Health)
“The World’s Largest Medical Library”
Online Support Groups
Online Pediatric Brain Tumor Support Groups
Pediatric Oncology Resource Center
"Resources and information for parents of children with cancer…by parents of children with cancer.”
“The Musella Foundation For Brain Tumor Research & Information.”
Financial Assistance Resources